July 25, 2013

Communication


Today is going to be an exciting day. Jace's bike should be shipping soon, although we are still awaiting for confirmation of shipping dates and expected arrival dates. Patience is difficult to grasp after all the effort into getting the funds raised so quickly. 

This is the summer of equipment and the summer of making it happen. I am currently ordering a new bath chair, a potty chair, working towards a pacer (see pic below), and at last, a very fancy piece of technology to assist Jace with communication by way of two switch step scanning. It's been a year process to work towards this goal and he is ready!




I think one of the most common misconceptions about understanding what a person with physical disabilities is capable of understanding and achieving is that just because their body interferes with their ability to participate in everything without the use of, “adaptive creativity”, if you will, does not decrease in any way what their mind is able to understand. We only limit ourselves by giving up or failing to attempt something new. For a child with an underdeveloped cerebellum, like Jace, his body function is all over the place. He can follow directions. Answer questions. Knows his ABC’s, can count to 10. He knows what he wants and tries to communicate. I'm so thankful for assistive technology to meet his communication needs. This will certainly expand his world, his choices, and hopefully give him more of his own voice.

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