Catching up!

So much to catch up on as I've been hoping to get Jace's Journey up and running but haven't quite perfected the page yet. Jace has become, "toothless Jace", losing his two front teeth on the same day. One before school, one after school. The tooth fairy was very good to him.

 We've begun to experiment with counting money and even sent him to school and told him how many books he could buy at the Spring book fair, he came home with 4 books and seems to be quite thrilled with his choices. He loves to be read to and I quite enjoy reading a book and flipping through the pages rather than letting an electronic device do it for me. Feels more personal, more memorable.

A huge goal that has been in progress over the past year is getting Jace a more advanced piece of equipment to help him communicate. His team has really been hard at work brainstorming for the right piece that meets his needs. We are trialing a piece of equipment called a Nova Chat 5 over the next two weeks. Jace works on his communicating and switch scanning abilities during the school year and during private therapy, it will be nice and less frustrating for him to eventually be able to communicate with his family whether he wants something or someone or to do something, it will give him a voice.

Someone has been sleeping a ton these days. Cute pic of Jace napping, he's likely on another growth spurt, giving him that appearance of being tall and at the same time, awkwardly skinny as his body lengthens, all that work on weight gain doesn't seem to catch up. It's possible it runs in the family as I noted that a few cousins are also appearing to be all leg this summer. Not as much time for play when he goes to bed at 9 pm and wakes up at 10:30 am. 

Finally, we've been working on obtaining a bike for Jace. It's something that insurance doesn't deem medically necessary but his little face is beyond lit up when he is on one. I may have finally put one together that will meet all his needs, give him a sense of freedom, work those legs, give him more skills toward  patterning and get him outside more. Hopefully, by tomorrow he will be on the wish list for it and I can begin my fundraising efforts to get him his own bike. In addition, Jace will also be participating in his first walk, roll and run event for UCP this year, under Jace's Journey. Looks like it will be an exciting summer for Jacers!