Last week was incredible for Jace. By Tuesday, he got through an entire day with no tears, continued to hold his head up (a difficult task for him); and Wednesday, Dad got to see him in the hart walker. It was fantastic, the first time his PT got to witness the side of Jace that most of the family witnesses, his giggly goofy side. Friday brought a tremendous surprise: he finally took steps with his left leg, was in a great mood and was honestly quite the trooper for the end of the week workout.
Good news for his future: we snagged our next round of intensive in November and will be continue on a weekly basis in addition to his schedule I will have for him at home. He really loves his hands being "crossed over, straighten them out" and than tucking his knees up to his chin, we do this 10 times and he giggles with every time.
Hopefully, I will get his hair cut this week (a challenge in itself)...he really had the "Edward" look going but when his sister put his hair up in a pony tail with a silver barrette, it was my wake up call to make him look more like a little boy...wish me luck with that!
Our goal this week is to capture on film, reciprocal steps in the hart walker, he is very close to this goal.
"As a parent of a child with special needs we need to enjoy our kids for who they are not for who they could have been"
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