September 22, 2011

Assistive Technology...

What a great day Jace has had...at school this week, he identified with 100 percent accuracy patterns of apples and leafs. He is impressing his teachers! Proud mom!


He has continued to gain weight and finally have satisfied and come to agreement that despite where he falls on the charts, I am no longer under pressure to push weight gain. He has some chunk...but realistically, he is never going to be in the 50 percentile for weight...feeling like the pressure is finally off and we can start learning how to properly introduce some blended foods into his diet. 


Great and exciting news! We received a referral for assistive technology and based on the outcome will probably be able to get Jace either an ipad or some switches at home depending on what is recommended. Yay! 


Possibly promising news, is we are going to attend a positioning clinic and hope to find a way to get Jace into a better wheelchair...the bad news is we might be stuck due to insurance and the recentness of the chair that insurance paid for...donations and creativity are always possibilities so we continue to have hope...as always...



"Perseverance is not a long race. It is many short races one after another." 

September 21, 2011

Jace Hayden hart walker at OneTrueMedia.com

Catching up!


It's been a while since our last blog...so much news to report!

Jace finally obtained his own hart walker...turns out if I leave the room with the camcorder capturing the moments, he will take the necessary steps that insurance wanted to see...he is now practically running his first few steps in it...spending nearly an hour a day in it at school.

More great news: he has improved so much with his swallowing abilities that he no longer is at risk for silent aspiration and is being fed daily at school, this is a huge improvement! We are very thankful to our OT who weekly came to my home and worked the skills with me. Thanks WJ!

The biggest news and change for Jace is that he started Kindergarten this fall and loves it so much, he almost gives me a dirty look when I show up to take him home. He is continuing to impress all teachers, therapists and staff.






New goals: hoping to introduce a blended diet soon! Working on crawling goals and unsupported sitting. Plan on having an Ipad for him to use at home for communication and hoping to receive a more suitable wheel chair for Jace.